Additional Information: We live in South Central PA and would be interested in meeting other families in the area.
Jennifer
Year of birth: 1972
Email Address: IMJENURU@comcast.net
Language: English
Additional Information: I live in the Philadelphia suburbs and go to clinic at St. Christophers Hospital for Children in Philadelphia.
Elizabeth
Year of birth: 1996
Parent's First Name: Andrea
Parent's Email Address: andreaandrews@yahoo.com
Language: English
Gabrielle
Year of birth: 2002
Parents' First Names: Derek & Linda
Parent's Email Address: pkudancemom10@comcast.net
Language: English
Additional Information: We go to St. Christopher's Hospital for Children in Phila, PA.. Gabby is now up to 245 in phe per day.
Sara
Year of birth: 1993
Email Address: cowlover022@hotmail.com
Parent's First Name: Jenn & Rich
Parent's Email Address: jandr8892@rcn.com
Language: English
Additional Information: Sara and Katherine are sisters who both have CPKU and are treated at St. Christopher's Hospital for Children.
Abby
Year of birth: 1994
Parents' First Names: Connie and Mark
Parents' Email Address: CLM2005RN@aol.com
Language: English
Additional Information: We live in South Central Pa. We go to Hershey Medical center.
Kathrine
Year of birth: 1996
Email Address: Kassie100@yahoo.com
Parents' First Names: Jenn and Rich
Parents' Email Address: jandr8892@rcn.com
Language: English
Additional Information: Katherine and Sara are sisters who both have CPKU and are treated at St.Christopher's Hospital for Children.
Cody
Year of birth: 1998
Parents' First Names: Deedra
Parents' Email Address: jode@bedford.net
Language: English
Additional Information: Cody is seen at Children's Hospital in Pittsburgh, Pennsylvania by Dr. Jane Breck.
Jakob
Year of birth: 2000
Parents' First Names: Kari/Pete
Parents' Email Address: thearbaughs@suscom.net
Language: English
Resources in Pennsylvania
Name of Establishment: Haven of Rest Bakery
Service: Specializes in baking low protein wheat starch products including bread, pizza crusts, cookies, whoopie pies, and homemade noodles
For ordering information: 717-738-2204
For ingredient information: 717-8672350
Please note: they do not ship product you must be able to pick it up.
Annie
Year of birth: 6/6/79
Email Address: agill@ptd.net
Language: English
Additional Information: I have 2 other sisters with PKU and one is brain damaged from it. We were taken off the diet and then put back on when I was about 21. Its hard and sometimes I feel Like I can't do it. Does anyone else feel this way? Anyone who needs to talk can email me. I work with Hershey Medical.
Jacob
Year of birth: 1997
Parent's First Name: Laurie
Parent's Email Address: ronibearsmom@yahoo.com
Language: English
Mary
Year of birth: 1992
Parent's Email Address: canadice2931@yahoo.com
Additional Information: Mary is classical PKU. Allowed 23 exchanges.
Jason
Year of birth: 2003
Parents' First Names: Dave and Ami
Parent's Email Address: LUCKYWITH4@MSN.COM
Additional Information: WE LIVE IN PLAINS,PA
Natalie
Year of birth: 2003
Parent's First Name: Melissa
Parent's Email Address: missyd823@comcast.net
Noah
Year of birth: 2005
Parent's First Name: Dean
Parent's Email Address: dean.delp@cigna.com
Additional Information: Noah is a quadruplet, he is the only one of the four who has PKU. Noah is one of six children in total.
Left to right top - Trenton & Dean
Left to right bottom, the quadruplets, Savannah, Noah (PKU), Avery, & Aspen
Olivia
Year of birth: 2004
Parent's First Name: Gina
Parent's Email Address: ginam16@hotmail.com
Tony
Year of birth: 6/1/87
Email Address: tonythetiger61787@hotmail.com
Parent's First Name: Shelly & Vince
Parent's Email Address: kratz@pa.net
Language: English
Hunter
Year of birth: 2007
Parent's First Name: Heath
Parent's Email Address: hwrenninger@bmsd.org
Language: English
Lindsey
Year of birth: 1985
Email Address: Lindsey985@hotmail.com
Language: English
Tamson [Tami]
Year of birth: 1971
Email Address: newport078@aol.com
Language: English
Additional Information: I live near Johnstown.I was born and raised in Bedford.
I am seen in Pittsburgh with Dr. Breck. She gives me hope and strength in coping
with my mild p.k.u. and many other health problems.
