Country Name: United Kingdom of Great Britain and Northern Ireland
Language(s): English, Welsh (about 26% of the population of Wales), Scottish form of Gaelic (about 60,000 in Scotland)
Border Countries: Ireland 360 km
Total Area: 244,820 sq km
Population: 60,094,648 (July 2003 est.)
Government Type: Constitutional monarchy
Capital City: London
National Holiday: Official Birthday of Queen Elizabeth II, celebrated on the second Saturday in June (1926)
Ross
Location:Hertfordshire
Year of birth: 1978
Email Address: rosst@pkuexchange.co.uk
Language: English
Additional Information: Great idea - I'll add a link from my site (PKU Exchange) to yours!!
Stephen
Location:Glasgow, Scotland
Year of birth: 31/03/1981
Email Address: sunnysteve@hotmail.com
Language: English
Additional Information: mon the hoops hahahaha
Seriuosly if anyone has any questions to ask me im 23 and im willing to help
Stevie
Joanne
Location:Co. Durham, England
Year of birth: 1970
Email Address: joanne_curtis@btinternet.com
Language: English
Additional Information: Fantastic webiste - great idea!
Julie
Location:London
Year of birth: 16.06.83
Email Address: jblue18uk@yahoo.co.uk
Language: only English
Additional Information: I would like to E-mail other pku people in all area's to see how there and get to no them.
Rebecca
Location:Glasgow, Scotland
Year of birth: 1978
Email Address: mancyr@dcs.gla.ac.uk
Language: English, français
Additional Information: Hi, I'm not PKU myself, but my French (and Swiss) sister-in-law is. I help with the French association, Les Feux Follets, by translating articles on PKU that are published in English for their newsletter.
Bonjour, je ne suis pas phénylcétonurique, mais ma belle-soeur l'est. Je participe à la traduction (anglais->français) d'articles scientifiques pour l'association française, Les Feux Follets.
Britta
Location:Kent
Year of birth: 1972
Email Address: brittamckay@tiscali.co.uk
Language: English, German
Additional Information: I am originally from Germany.
Kelly
Location:Dorset
Year of birth: 1979
Email Address: KFOR769@aol.com
Language: English
Additional Information: I am going through the process of restarting the diet after being off it for 10 years.
Helen
Location:Cheshire
Year of birth: 1972
Email Address: kellys04@tiscali.co.uk
Language: English
Additional Information: Looking forward to hearing from anyone with pku in this country and, hopefully, someone in a similar situation to mine - a mum with pku to pku/non-pku children.
Niamh (Neeve)
Location:Fife, Scotland
Year of birth: 2003
Parent's Name: Mary
Parent's Email Address: marygahagan@aol.com
Language: English
Additional Information: Niamh is 6 months old, she is enjoying being weaned onto solid foods and is eating us out of house and Home. She attends Edinburgh Sick Kids and is lucky to have a Brilliant Team who care for her PKU. Niamh has 2 Brothers in their 20's and 2 Teenage Sisters, none have PKU.
Nicole
Location:Ayrshire, Scotland
Year of birth: 1982
Email Address: Bro0ke2003@aol.com
Language: English
Additional Information: I have been through the maternal part of PKU.
If anyone has any Questions or advice to ask please feel free to e-mail me!
Am looking to meet a freind with same circumstances!
Will
Location:Essex
Year of birth: 2001
Email Address: tony.reg@btinternet.com
Language: English
Additional Information: Will has an older brother (born 1999) who is non-PKU.
Louise
Location:Brimingham, England
Year of birth: 1984
Email Address: loumarie84@hotmail.com
Language: English, Francais, Deutsch
Additional Information: I'm nearly seven months pregnant and have PKU and would love to get in touch with others who have pku.
Ray
Location: Lanarkshire, Scotland
Year of birth: 1980
Email Address: denidon@yahoo.com
Language: English
Helen
Location:Sunderland
Year of birth: 1984
Email Address: hwiddrington@hotmail.com
Language: English
Daisy
Location:Yorkshire, England
Year of birth: 2004
Parent's Name: Simon Murphy
Parent's Email Address: smurphy280772@hotmail.com
Language: English
Additional Information: Daisy was born on sat 7th august 2004, and only just been diagnosed with pku, so very early days for both myself and Diana (daisy's mum) daisy has responded really well to the analogue, which is great news.
Anyone wanting to get in touch with any advice or just to chat please do as both Di and I are novices in this at the minute.
Cara
Location:West Lothian, Scotland
Year of birth: 1987
Parent's Name: Kim
Parent's Email Address: kim@schuh.co.uk
Language: English
Additional Information: I'm finding quite hard to stay on my diet when i'm on school holidays can anyone who lives in scotland and is around the same age as me give me any tips who to stay on track?? thanks
Hannah
Location: England
Year of birth: 1992
Email Address: h_edwards1@hotmail.co.uk
Parent's Name: Miriam
Parent's Email Address: fostermim@yahoo.co.uk
Language: English
Additional Information: My name is Hannah i am 15 i have pku im on 6 exchanges and i have a sister with pku as well i have 2 non pku brothers i like to meet new pkus and sing and dance and love holidays i go to the pku conferences email me if you like.
Seamus
Location:Manchester, UK
Year of birth: 2001
Parent's Name: Kiri & Martin
Parent's Email Address: kiri@oceanfree.net
Language: English
Additional Information: Seamus was diagnosed by screening soon after he was born (in Australia). He is a very happy boy, and his development is normal so far. He is under the excellent team at the Royal Manchester Children's Hospital, and is currently on 5.5 exchanges.
Anthony Western
Location:Redditch Worcestershire, England
Email Address: awdl24208@blueyonder.co.uk
Year of birth: 19/02/72
Language: English
Josh
Location:Essex, England
Year of birth: 2003
Parent's Name: Linda
Parent's Email Address: Shutupzombie@hotmail.com
Language: English
Additional Information: have a son with pku and would like to here from others with it.please get in contact if u want to chat xx
Kelly
Location: Dorset, England
Year of birth: 1979
Email Address: KFOR769@aol.com
Language: English
Lorna
Location:Chester, UK
Year of birth: 1979
Email Address: lornacrayford@hotmail.com
Language: English
Additional Information: Have just restarted pku diet after 10 years of being off diet.
Intersted in hearing from people who have been through the maternal part of pku.
Mckenzie
Location:England
Year of birth: 2004
Parent's First Name: Carol
Parent's Email Address: lawhouse113@aol.com
Language: English
Andrew Jones
Location:Gloucestershire, England
Year of birth: 1964
Email Address:quicksilver@hotmail.co.uk
Language: English
Additional Information: I am 41 years old and came off the pku diet when I was 10 years old. I have had very few problems with PKU and have participated in numerous PKU trials with Pendlebury Hospital. I am married with 2 children and am a successful driving instructor. Please e-mail if you would like to discuss any aspects of PKU.
Additional Information: lily is 2 months old just getting used to lily having PKU still using analog xp feed. I am only a 17 year old mother would like to get in contact with other parents to see how they cope when starting to use the diet :o)
Additional Information: Robbie is a classic PKU, he has a younger Sister Nicola who is also Classic pku.
Nikki is on 5 exchanges and robbie is on 7
Melanie
Location:South Yorkshire
Year of birth: 1975
Email Address: melfolkes@yahoo.co.uk
Language: English
Additional Information: Have successfully had a baby who doesn't have PKU.
Lexy
Location:England
Year of birth: 2006
Parent's First Name: Becci
Parent's Email Address: lexy050206@hotmail.co.uk
Language: English
Additional Information: Lexy has taken to her formula (analog xp) well, although her levels are still not stable!! I would love to hear from anyone with children with PKU or people with PKU....
Additional Information: Freya was diagnosed ten days after she was born in February 2006. Came as a bit of a shock to us, but I guess that's no surprise. Would be happy to hear from parents/patients alike.
Owen
Location:Scottish Borders
Year of birth: 1983
Email Address: info@oweninteractive.co.uk
Language: English
Additional Information: Live in the Borders of Scotland, a professional singer/songwriter and performer as well as music promoter. Has PKU and has known about it all of life.
Kreseda
Location:Shropshire
Year of birth: 1978
Email Address: kresedasmith@harper-adams.ac.uk
Language: English
Lilly
Location:Northyorkshire
Year of birth: 2006
Parent's First Name: Emma
Parent's Email Address: EPAT25@HOTMAIL.COM
Language: English
Additional Information: HI WE ARE PROUD PARENTS OF LILLY WHO WAS FOUND TO HAVE PKU AT JUST TEN DAYS OLD. IT CAME AS I VERY BIG SHOCK TO US AND OUR FAMILIES AS WE ALREADY HAVE THREE CHILDREN WHOM DONT HAVE PKU AND WE HAD NEVER HEARD OF THIS BEFORE.BUT NOW WE ARE JUST ON WEANING STAGE WITH LILLY AND SHE IS DOING REALLY WELL WITH HER LEVELS.WE HAVE ALSO BEEN TO THE LABS TO SEE WHAT THEY DO WITH HER BLOOD WHEN THEY RECIEVE IT AND THAT HAS HELPED US REALIZE HOW IMPORTANT IT IS TO GET IT RIGHT.WE WOULD BE MORE THAN WILLING FOR ANY NICE AND QUICK RECIPES THAT ANYONE KNOWS OF AS DINNER AND TEA TIME IN OUR HOUSE IS BEDLUM.CHEERS LILLY MUM AND DAD.
Louis William Bailey
Year of birth: 1996
Parent's First Name: Mike
Parent's Email Address: m.bailey@thinkap.com
Language: English
Additional Information: My name is Louis Bailey and I am 10 years old. I have PKU and live in England.
I enjoy all kinds of sports and have many hobbies.
I love Pirates of the Carribean.
Nicola
Year of birth: 1994
Email Address: glitter_gal358@hotmail.co.uk
Parents' First Names: Sandra and Peter
Parent's Email Address: p.bramley1@ntlworld.com
Language: I am English.
Additional Information: I'm Niki and I'm 12. I live in Hertfordshire in a village called Watton-at-Stone. My best mates are Hannah Cooke, Alex Smith, Annie Martin, Frances Slater and Lois Hutchings. My PKU best mates are Louis Bailey, Rebecca Munns, Rebecca Silby, Opal, Flo, Jo, Grace, Emma and Lorissa! Chek out my Webbie: www.neutral-respect.piczo.com. I lyk Art and Music!
x~niki~x x~keepin it real~x
Melissa
Location: Manchester
Year of birth: 2005
Parents' First Names: Fiona and Paul
Parent's Email Address: fionamarie62@hotmail.com
Language: English
Additional Information: Melissa was born just before christmas last year and we found out 3 days before xmas eve that she was PKU. After being shocked and heartbroken we realised that with care and attention things would be OK. We would like to hear from other PKU families to share recipes, experience etc
Frances
Location:Bristol, England
Year of birth: 1984
Email Address: blame_the_koala@hotmail.com
Language: English
Additional Information: I have very mild PKU, would like to get in touch with anyone similar.
Kathryn
Location:Devon, England
Year of birth: 1978
Email Address: mummymonk@blueyonder.co.uk
Language: English
Additional Information: Have got married and have had three children all born without pku!
Effie
Location:Bath, Somerset
Year of birth: 2002
Parent's Name: Katherine
Parent's Email Address: kathsenior@talktalk.net
Language: English
Additional Information: Effie is 5 years old and has pku. She has an 18 month old sister called Lola who also has pku. Effie would love to hear from other children who are the same age.
